Saturday, July 3, 2010

Video link, etc.

I never could figure out how to post our video here, but it's up on YouTube. Here's the link:

We've been home for about three weeks now, and life is slowly getting back to normal. Last week we all participated in the Spina Bifida Association of America's national conference in our home town of Cincinnati. It's always fun to connect with other parents of children with SB and adults with SB as well as hear sessions from doctors, nurses, and therapists. One of Amelia's surgeons was talking to a mom from out of town about one of his patients who is "young and very complicated, but an excellent self-advocate, and very educated about her condition." I overheard this as I was helping coordinate some volunteers, and the surgeon actually grabbed me and said, "Here's the mom of the little girl I was talking about!"

Amelia is going to be having another surgery in August on both feet, so we're going to try to get all of our swimming in before she comes home with two casts at the same time! She had the option to do one surgery at a time, but told the surgeon, "Just get it done!" She cracks me up.

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